I have Multiple Myeloma. I am only 47 and now I also have severe osteoporosis, caused by the Multiple Myeloma
My question is, Is it safe to exercise, ride motorcycles, have sex, etc... with severe osteoporosis?
Answers:
I am not sure if you are referring to the lytic lesions of myeloma or to actual ostoeoporosis. They are two separate conditions, and I know nothing at all about osteoporosis.
If you are referring to the bone weakening lytic lesions ('lucencies') of multple myeloma, then you really DO need to be very very careful. People can develop spontaneous fractures, without doing anything at all to stress the bone. (I had a patient come in with a fractured humerus one day, and say that he heard it snap when he reached across the blackjack table to pick up a card.)
Discuss with your doctor whether or not it would help to be on bisphosphonate therapy such as Aredia or Zometa. They can help strengthen your bones. Ask him how much risk you have. It may not be as bad as you think.
If you have not already done so, contact the International Myeloma Foundation. They are a wonderful resource.
Good luck to you.
MM
Hey, sorry to hear about this. Follow your doctors advice, that's number one. Trust the way you feel. Look, you can live cautiously and miss out on some good times and cause those you love, who will be left behind, to remember you as one who was ill and cautious. Live life as best as you can as your body allows you. If you feel weak, take it easy. If you're having lots of pain, lay low. But on those days when you're feeling like you've got a little more going ... have some fun. Do it for your sake and for the memories you will leave with those you love. Live, love, laugh ...
Maybe you should check with your oncologist on any precautions you need to take. But if I had multiple myloma I think I would do what ever I wanted ( maybe skydiving, swim with sharks). You deserve it for what you are going through. Good luck with it.
My mom has been diagnosed multiple myeloma she has three compound fractures in her back ( 3 Vertebrae ). Hate to hear that man I really do. She has the hump on her back from it. They gave her a brace to wear on her back to keep from braking ANY MORE. Only thing they told us was to be very careful. I say you know what you're body is capable of the motorcycles i would not trust but I don't trust them any way lol I'm clumsy though. As for sex I say just be careful i wouldn't be hanging from the rafters or nothing and ask you;re Doctor.
and god bless
Hi you answered my question about my mom she is 62 I'm 24 she was on thalidomide but they put her on revlomid because of side affects of thalidomide, also steroids 4days off 4days, and they have her on blood thinner also because the revlomid one side affect is blood clots so the blood thinner lowers the risk.
I think you can do anything that doesn't hurt you physically. Sorry about the MM. It is an awful disease. Good luck to you.
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Answers:
I am not sure if you are referring to the lytic lesions of myeloma or to actual ostoeoporosis. They are two separate conditions, and I know nothing at all about osteoporosis.
If you are referring to the bone weakening lytic lesions ('lucencies') of multple myeloma, then you really DO need to be very very careful. People can develop spontaneous fractures, without doing anything at all to stress the bone. (I had a patient come in with a fractured humerus one day, and say that he heard it snap when he reached across the blackjack table to pick up a card.)
Discuss with your doctor whether or not it would help to be on bisphosphonate therapy such as Aredia or Zometa. They can help strengthen your bones. Ask him how much risk you have. It may not be as bad as you think.
If you have not already done so, contact the International Myeloma Foundation. They are a wonderful resource.
Good luck to you.
MM
Hey, sorry to hear about this. Follow your doctors advice, that's number one. Trust the way you feel. Look, you can live cautiously and miss out on some good times and cause those you love, who will be left behind, to remember you as one who was ill and cautious. Live life as best as you can as your body allows you. If you feel weak, take it easy. If you're having lots of pain, lay low. But on those days when you're feeling like you've got a little more going ... have some fun. Do it for your sake and for the memories you will leave with those you love. Live, love, laugh ...
Maybe you should check with your oncologist on any precautions you need to take. But if I had multiple myloma I think I would do what ever I wanted ( maybe skydiving, swim with sharks). You deserve it for what you are going through. Good luck with it.
My mom has been diagnosed multiple myeloma she has three compound fractures in her back ( 3 Vertebrae ). Hate to hear that man I really do. She has the hump on her back from it. They gave her a brace to wear on her back to keep from braking ANY MORE. Only thing they told us was to be very careful. I say you know what you're body is capable of the motorcycles i would not trust but I don't trust them any way lol I'm clumsy though. As for sex I say just be careful i wouldn't be hanging from the rafters or nothing and ask you;re Doctor.
and god bless
Hi you answered my question about my mom she is 62 I'm 24 she was on thalidomide but they put her on revlomid because of side affects of thalidomide, also steroids 4days off 4days, and they have her on blood thinner also because the revlomid one side affect is blood clots so the blood thinner lowers the risk.
I think you can do anything that doesn't hurt you physically. Sorry about the MM. It is an awful disease. Good luck to you.
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