How can I get a spinal tap test when doctors refuse?
I have rare IgM deficiency disorder. Most doctors are not educated on the disease, and my care/illness has been hellish due to lack of further evidence.Years back many doctors thought a spinal tap test would show health problem and one was done, but the test was never run on the sample taken, and doctors were told the test was found negative when it wasn't run at all. When I discovered the error years later and learned my chronic sepsis problem could only best be shown by lumbar puncture/spinal tap testing, doctors turned me away. My care is bad due to lack of proof due to too many skeptical doctors who won't call the CDC for their treatment guidelines I seek. My neuro damage temporary or permanent? is a social and pain problem and I want help to get the test or the reccommended CDC care. IgM specialists are out of state and may or may not do the test. I'd like the proof as so many doctors disagree with the CDC info that I don't know how else to assuage their doubts.
Answers:
Why you would want to go through this awful test is beyond me, but the first step is in contacting the CDC and getting the papers that you can show your doctors so you cite cases.
Drs. are very impressed by actual papers written by other doctors. Call the IgM specialists who are out of state and ask for recommendations within your state, they may know of someone they have met at a conference who has an interest in your disease. You may find that diagnosis is no longer dependent on a puncture, new things and tests are always happening, for your sake I hope so.
I am a physician. If this test is indeed indicated then your doctor should order it. If he or she refuses then find a new doctor in the area. If multiple doctors are telling you that this is not needed, then there is likely a good reason -especially if you are pointing out that it is need. Perhaps your understanding of the medical recommendations is not complete and you should print of the whole section and go over it with your doctor. Most of the time these sorts of problems are due to poor communication (patient or doctor) rather than poor doctoring.
www.emedicine.com is a useful resource if you are looking for info. Else do a primary lit search for your problem and see what studies have shown.
get a referral for a new GP from a friend
Call the new doctors office and say "I am interviewing doctors in order to hire one as my general practitioner.
When you get the first appointment say I am new in the area and have had a past problem with possible( whatever that illness was) and tell him a spinal tap was never able to be completed I am very new here and would like you to get this done so I can relax and settle in here.
He may just do it .. Tell him "I have no previous records due to my move and My old doctor was fresh outta medical school and I would rather my new doctor not consult with him cause I don't want him to feel intimidated by a seasoned doc. You understand sir don't you?
If he insists on cunsulting Say Im sorry but thats not something I will agree to and find another doctor telling no doctor about previous doctors
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Answers:
Why you would want to go through this awful test is beyond me, but the first step is in contacting the CDC and getting the papers that you can show your doctors so you cite cases.
Drs. are very impressed by actual papers written by other doctors. Call the IgM specialists who are out of state and ask for recommendations within your state, they may know of someone they have met at a conference who has an interest in your disease. You may find that diagnosis is no longer dependent on a puncture, new things and tests are always happening, for your sake I hope so.
I am a physician. If this test is indeed indicated then your doctor should order it. If he or she refuses then find a new doctor in the area. If multiple doctors are telling you that this is not needed, then there is likely a good reason -especially if you are pointing out that it is need. Perhaps your understanding of the medical recommendations is not complete and you should print of the whole section and go over it with your doctor. Most of the time these sorts of problems are due to poor communication (patient or doctor) rather than poor doctoring.
www.emedicine.com is a useful resource if you are looking for info. Else do a primary lit search for your problem and see what studies have shown.
get a referral for a new GP from a friend
Call the new doctors office and say "I am interviewing doctors in order to hire one as my general practitioner.
When you get the first appointment say I am new in the area and have had a past problem with possible( whatever that illness was) and tell him a spinal tap was never able to be completed I am very new here and would like you to get this done so I can relax and settle in here.
He may just do it .. Tell him "I have no previous records due to my move and My old doctor was fresh outta medical school and I would rather my new doctor not consult with him cause I don't want him to feel intimidated by a seasoned doc. You understand sir don't you?
If he insists on cunsulting Say Im sorry but thats not something I will agree to and find another doctor telling no doctor about previous doctors
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