Anybody else enjoy a spinal cord stimulator?
I have had a spinal cord stimulator since the age of 13 (I was the youngest being in my state to get one). With the stimulator I was 100% distress free, though they now know that I have a rare scarring condition call keloid scarring so basically the leads are eventually blocked by my heavy blemish tissue (even though I've had 3 revision surgeries they've all failed). Now the stimulator is just sitting inside of me since it doesn't work, and I hold found an alternative for my pain (caused by RSD/CRPS). I would like to have it removed, but I risk getting the RSD/CRPS subsidise from another surgery. I only would like to have it removed because he mobile pack is set on a nerve so it's very tender and causes abundantly of pain. Anybody have any suggestions about what to do? Anybody else own similar problems with the battery pack of their SCS? Thanks!
Answers: ice, i hold RSD, also, but have refused the SCS.and this is why! i'm so very sorry that you are have such a hard time with it.
i guess you have to weigh the pros and cons near your doctor. i know that i, too, live in fear of anything that could flare my RSD, but i also would question if keeping the SCS within place isn't aggravating your RSD.
unfortunately, with keloid scarring any surgery is going to cause more scarring, but it might be worth have the surgery to have it removed if it's keeping your RSD flared.
another thought, maybe they can just remove the battery-operated pack and not have you go thru the intensive surgery of removing the whole entity? if the battery pack is your main concern right now, perchance that's an option. a second opinion when it comes to surgery is ALWAYS an good belief. talk this over with several and let me know what you wish... ok? hang in there!
Keloids are in actual fact not a rare occurance, they are common in some tribal groups and more rare in others.
Due to the fact that reliable groups get keloids commonly, there have be great strides in decreasing the development of keloid scarring in simple procedures which do not enjoy continuous pressure issues. Also, there are methods to decrease the risk of a significant recurrance of the CRPS from a planned surgical procedure.
If you want to have the SCS freestyle pack removed, then you might want to discuss the issue with both your pain specialist, and a plastic/reconstructive surgeon who specializes surrounded by working with keloid patients. There are plastic/reconstructive surgeons in most major cities next to this experience.
I am surprised, however, that your tendency to develop keloids was not noted prior to the initial implantation. Most patients who develop keloids have significant scar from previous injuries.
I really don't have a answer for your question, however I have 3 friends beside STS units, my best friend has had 2.
They want me to obtain one but I don't know anyone that has RSD it has worked for more than 6 months, then it is a spend of effort. A major surgery, I do not blame you for wanting it our, I can't see having it within if it does not work. I know that they do not like to take them out because your body grows around them, and this involves a lot of adjectives.
My friend Jim had his first one taken out before the second one was put surrounded by and I felt so bad for him. You are right the RSD went totally raging.
I know if I so much as have a needle prick my RSD gets extensive, I live in fear of it, I so feel your stomach-ache.
I am odd, it spreads easily, and in 8 years it have gone total body, I even have it in my mouth.
I have found my path of dealing, it takes practice, but I am curious, how did you get to remission?
I can get my friend to e-mail you if entail, if you can't find anyone else who has had the surgery. Otherwise, ask me a specific question and I can find out.
R u or someone u no recovering from spinal cord despoil?
Which is the best style to jump a spinal block a epidural or only just regular aching medication?
Spinal tap/lumbar puncture affliction?
Where contained by London can I find the best comfort (hospital, clinic) for spinal injuries?
Explain a spinal fusion from L5 to s1?
Answers: ice, i hold RSD, also, but have refused the SCS.and this is why! i'm so very sorry that you are have such a hard time with it.
i guess you have to weigh the pros and cons near your doctor. i know that i, too, live in fear of anything that could flare my RSD, but i also would question if keeping the SCS within place isn't aggravating your RSD.
unfortunately, with keloid scarring any surgery is going to cause more scarring, but it might be worth have the surgery to have it removed if it's keeping your RSD flared.
another thought, maybe they can just remove the battery-operated pack and not have you go thru the intensive surgery of removing the whole entity? if the battery pack is your main concern right now, perchance that's an option. a second opinion when it comes to surgery is ALWAYS an good belief. talk this over with several and let me know what you wish... ok? hang in there!
Keloids are in actual fact not a rare occurance, they are common in some tribal groups and more rare in others.
Due to the fact that reliable groups get keloids commonly, there have be great strides in decreasing the development of keloid scarring in simple procedures which do not enjoy continuous pressure issues. Also, there are methods to decrease the risk of a significant recurrance of the CRPS from a planned surgical procedure.
If you want to have the SCS freestyle pack removed, then you might want to discuss the issue with both your pain specialist, and a plastic/reconstructive surgeon who specializes surrounded by working with keloid patients. There are plastic/reconstructive surgeons in most major cities next to this experience.
I am surprised, however, that your tendency to develop keloids was not noted prior to the initial implantation. Most patients who develop keloids have significant scar from previous injuries.
I really don't have a answer for your question, however I have 3 friends beside STS units, my best friend has had 2.
They want me to obtain one but I don't know anyone that has RSD it has worked for more than 6 months, then it is a spend of effort. A major surgery, I do not blame you for wanting it our, I can't see having it within if it does not work. I know that they do not like to take them out because your body grows around them, and this involves a lot of adjectives.
My friend Jim had his first one taken out before the second one was put surrounded by and I felt so bad for him. You are right the RSD went totally raging.
I know if I so much as have a needle prick my RSD gets extensive, I live in fear of it, I so feel your stomach-ache.
I am odd, it spreads easily, and in 8 years it have gone total body, I even have it in my mouth.
I have found my path of dealing, it takes practice, but I am curious, how did you get to remission?
I can get my friend to e-mail you if entail, if you can't find anyone else who has had the surgery. Otherwise, ask me a specific question and I can find out.
The information post by website user , Helpde.com not guarantee correctness.