Spinal Cord Stimulator?
I was diagnosed with RSD/CRPS in August. It is my right knees (caused by 2 knee surgeries earlier this year). Now it has moved down to my lower leg and foot on my right side. I stir to a pain center. My first visit was where on earth they discussed my options. My doctor told me that I should have a sympathetic nerve block b/c we are already aware that meds do not control my cramp anymore. So; I did the nerve block. It gave me relief for 4 hours (the just 4 hours that i've been pain free since March!). But on my next call on he said that its pointless to do anymore nerve blocks since that one did not help beyond the local anethesia. He said that he wants me to seriously consider a Spinal Cord Stimulator. I'm solitary 23 and am not sure I want to take such a large step just however. But he said if we do not get a handle on it; it could spread further. Had anyone had a SCS and have a child when it was implanted? Does the SCS limit any function what so ever in your on a daily basis life?
Answers: hi i have been living next to RSD/CRPS for over 18 years. it's bullshit! i hate it Dr's only want the kickback of meds. they could care smaller number if one feels anything. i have been living beside the mind set that even tho i cannot feel my hands and feet on a consistent cause, my mind is strong enough to tell my body to work, i live with crazy spasm i can not even describe, however, if it wasn't for the blocks i received back in 1990-1991 i would not be functioning today! i had 9 stellate ganglion blocks and 6 bertinion blocks, it be scary, but there is a treatment process. after the 3rd stellate my rt lung collapsed, they inflated it again, for 18 months i was within therapy and treatment to walk again and try to make my body read between the lines what to do without feeling. i have lost over 125 lbs and am no longer the lubricant chick the Dr's claim was why i couldn't close my hand to open a door. i hold tried everything i left my hometown to seek out o new existence without the bullshit, with medical records contained by hand i have not had a occasion to have a Dr look at my situation and want to help me they tell me i am too complicated. angry! yes i hold been for many years, however, i am a strong independent that has never played the object to this RSD/CRPS it will not win me i will control it because that is the only way i can cope!
I hold a SCS. I've had it since April 2006 (I was 14). I am currently the youngest patient within Utah to have one implanted, and so far I have not had any problems near limiting any functions of my daily life. My only problem have been that I have a rare scarring condition which have caused my stimulator leads to keep scarring over and out of order. I've had two revisions to try to solve this problem, but my scar tissue just keep taking over so I am currently looking into other treatments because of this scarring condition. I had 100% pain relief and if it wasn't because of my defacement tissue I would most likely still have 100% pain nouns. After the initial healing period of the surgery I did well beside everything, I was swimming and figure skating and going to school full time. I be doing excellent until my scar tissue finally built up and blocked the stimulation, and after two revisions and trying to monitor the scar tissue I am looking into an exprimental treatment to see if it will help my dull pain. The year of pain relief that I got from my RSD/CRPS misery was certainly worth it though. I was competent to walk without pain (I enjoy my RSD/CRPS in my right leg from my knee to my toes, caused by a knees surgery when I was 13). Feel free to e-mail me if you have any other questions. Good luck! I'm so sorry to hear of your throbbing. I, too, deal with chronic pain and hold had it for 5 years now. I was told my finishing 2 options were either the SCS or a affliction pump. After much research, I learned the SCS wasn't right for me. But only because my injury is pretty rare and nobody seem to know where to place the leads for the SCS. I've talked near several who have had it and many hold had good results with it. I've done great near my pump, and belong to a yahoo group called pumpsters and many there treat their RSD next to a pump. I know you said you won't use narcotics and can respect that. But I do know that many have said their RSD spread because it wasn't treated quickly, so anything you decide, I hope you do it quickly so the pain doesn't spread and carry worse. I wish you the best of luck. Also, I'm not sure if there are certain reason you won't use narcotics, but I do highly recommend you look into the pump. Your body doesn't have to metabolize the meds like when they are taken in words, and you also have no control over the amount of meds that are taken. The doctor does increases in the office beside a small and held computer and that is it. It is a much smaller amount of medication that is delivered through the pump than taken out loud. If you would like more information, I recommend joining pumpsters. I was 100% against it because I associated morphine with walking around close to a zombie. But after I joined that group, I changed my mind and now know it was the best edict I made. I am permanently disabled at the age of 30, but have some Independence back and am living again. Again, I aspiration you the best in whatever route you take. I hope you enjoy a pain free future!!
Did you try Fentanyl Patches?
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Answers: hi i have been living next to RSD/CRPS for over 18 years. it's bullshit! i hate it Dr's only want the kickback of meds. they could care smaller number if one feels anything. i have been living beside the mind set that even tho i cannot feel my hands and feet on a consistent cause, my mind is strong enough to tell my body to work, i live with crazy spasm i can not even describe, however, if it wasn't for the blocks i received back in 1990-1991 i would not be functioning today! i had 9 stellate ganglion blocks and 6 bertinion blocks, it be scary, but there is a treatment process. after the 3rd stellate my rt lung collapsed, they inflated it again, for 18 months i was within therapy and treatment to walk again and try to make my body read between the lines what to do without feeling. i have lost over 125 lbs and am no longer the lubricant chick the Dr's claim was why i couldn't close my hand to open a door. i hold tried everything i left my hometown to seek out o new existence without the bullshit, with medical records contained by hand i have not had a occasion to have a Dr look at my situation and want to help me they tell me i am too complicated. angry! yes i hold been for many years, however, i am a strong independent that has never played the object to this RSD/CRPS it will not win me i will control it because that is the only way i can cope!
I hold a SCS. I've had it since April 2006 (I was 14). I am currently the youngest patient within Utah to have one implanted, and so far I have not had any problems near limiting any functions of my daily life. My only problem have been that I have a rare scarring condition which have caused my stimulator leads to keep scarring over and out of order. I've had two revisions to try to solve this problem, but my scar tissue just keep taking over so I am currently looking into other treatments because of this scarring condition. I had 100% pain relief and if it wasn't because of my defacement tissue I would most likely still have 100% pain nouns. After the initial healing period of the surgery I did well beside everything, I was swimming and figure skating and going to school full time. I be doing excellent until my scar tissue finally built up and blocked the stimulation, and after two revisions and trying to monitor the scar tissue I am looking into an exprimental treatment to see if it will help my dull pain. The year of pain relief that I got from my RSD/CRPS misery was certainly worth it though. I was competent to walk without pain (I enjoy my RSD/CRPS in my right leg from my knee to my toes, caused by a knees surgery when I was 13). Feel free to e-mail me if you have any other questions. Good luck! I'm so sorry to hear of your throbbing. I, too, deal with chronic pain and hold had it for 5 years now. I was told my finishing 2 options were either the SCS or a affliction pump. After much research, I learned the SCS wasn't right for me. But only because my injury is pretty rare and nobody seem to know where to place the leads for the SCS. I've talked near several who have had it and many hold had good results with it. I've done great near my pump, and belong to a yahoo group called pumpsters and many there treat their RSD next to a pump. I know you said you won't use narcotics and can respect that. But I do know that many have said their RSD spread because it wasn't treated quickly, so anything you decide, I hope you do it quickly so the pain doesn't spread and carry worse. I wish you the best of luck. Also, I'm not sure if there are certain reason you won't use narcotics, but I do highly recommend you look into the pump. Your body doesn't have to metabolize the meds like when they are taken in words, and you also have no control over the amount of meds that are taken. The doctor does increases in the office beside a small and held computer and that is it. It is a much smaller amount of medication that is delivered through the pump than taken out loud. If you would like more information, I recommend joining pumpsters. I was 100% against it because I associated morphine with walking around close to a zombie. But after I joined that group, I changed my mind and now know it was the best edict I made. I am permanently disabled at the age of 30, but have some Independence back and am living again. Again, I aspiration you the best in whatever route you take. I hope you enjoy a pain free future!!
Did you try Fentanyl Patches?
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